How to Enroll

If you are the parent or primary caretaker of a minority child (under 18 years of age) diagnosed with Fragile X Syndrome (FXS), you may qualify to participate in this study. Read the “Informed Consent” form for full participation criteria. At the end of the form you must select “I agree” in order to continue. Once you select “I agree,” you will be directed to the enrollment and survey site.

 

During enrollment, you will create and use a 4-digit Pin Number to confirm your consent. The PIN Number can also be used to correspond with the researcher instead of personally identifiable information such as your name. Your Pin Number is confidential, it allows the researcher to protect your identity while matching survey responses to an individual respondent.        

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Once you have been enrolled in the research study, then you can begin the survey by clicking on the survey tab at the end of the enrollment questionnaire.